Institute of Social Medicine and Epidemiology
At the Institute of Social Medicine and Epidemiology we strive to unpack the qualities of social relationships and specific social structures that shape people’s care realities and frame opportunities for good care. To realize this aim, we begin with a different point of departure namely the care recipients as an individual embedded in social networks and social structures in sharp contrast to the oft assumed decontextualized, autonomous individual. From this starting point we creatively interrogate how the provision of healthcare might be qualitatively and quantitatively transformed to better meet the needs of socially situated care recipients.
Our research program is structured along the continuum of basic research (understanding healthcare and society), health care services research (rendering local healthcare realities visible) and interventional or translational research (improving healthcare). Thematically, we are currently pursuing these goals in the thematic areas of aging and society, gender and health inequalities, global health, and illness narratives. As the institute develops we will expand these research foci.
In the medical-scientific curriculum, social medicine and epidemiology are anchored as central theoretical and methodological subjects at Brandenburg Medical School. In our teaching, we place equal importance on the study of empirical research methods as we do on the critical evaluation of existing knowledge. In particular, we encourage students to develop an in-depth understanding of the social and institutional determinants of health and illness.
For more details (in German) see here.
In addition, we are always looking for interested research assistants and student assistants to support us in the field of research. Please send us your unsolicited application.
For news about our research, please visit us on LinkedIn!
Inga Geiermann
E-Mail: inga.geiermann@mhb-fontane.de
Janis Pehl
E-Mail: janis.pehl@mhb-fontane.de
Lisa Pellmann
E-Mail: lisa.pellmann@mhb-fontane.de
Anna Weber
E-Mail: anna.weber@mhb-fontane.de
Jakob Mokros
E-Mail: jakob.mokros@mhb-fontane.de
Neo Weidauer
E-Mail: neo.weidauer@mhb-fontane.de
Emily Schumann
E-Mail: emily.schumann@mhb-fontane.de
Dr. Martina Breuning
E-Mail: martina.breuning@uniklinik-freiburg.de
Hella Fügemann
E-Mail: hella.fuegemann@mhb-fontane.de
Dr. Philipp Jaehn
E-Mail: philipp.jaehn@mhb-fontane.de
Dr. Sibille Merz
E-Mail: sibille.merz@mhb-fontane.de
Dr. Andreas Bergholz
E-Mail: andreas.bergholz@mhb-fontane.de
Dr. Alessia Gatti
E-Mail: alessia.gatti@mhb-fontane.de
Dr. Annina Althaus
E-Mail: annina.althaus@mhb-fontane.de
Thomas Götz
E-Mail: thomas.goetz@mhb-fontane.de
Contact:
Brandenburg Medical School Theodor Fontane
Institute of Social Medicine and Epidemiology
Steinstr. 66/67, House 4
D-14776 Brandenburg/Havel
Email: info.sozepi[at]mhb-fontane.de
Phone: +49 3381 218-1280
Fax: +49 3381 218-1289
LinkedIn: Institut für Sozialmedizin und Epidemiologie MHB Fontane
Click here to find us via OpenStreetView.
For more details (news, staff, research projects, publications etc.) see German website.
Here you will find our institute's publications.
Research projects
Given the demographic developments and the associated increase in social and healthcare services along with their costs, aspiring doctors are faced not only with providing medical care to patients, but also with the question of a sustainable and equitable distribution of resources in the healthcare system. This gives increasing importance to the fields of health economics and social medicine.
The cross-sectional area Q3 is dedicated to the teaching of health economics, health systems and public health care in medical studies since the revision of the medical licensing regulations in 2022.
The project addresses the question of how teaching of health economics, healthcare systems, and public health must be structured to be simultaneously engaging and effectively prepare students for their future professional career.
Project member: Dr. med. Annina Althaus
DIPEx - Database of Individual Patients' Experiences
The experience of other affected persons is of main importance in coping with illness. However, not much is known about ways in which scientifically investigated and publically available narratives of individual illness are used. One aim of DIPEx Oncology was to make such illness-related experiences of patients with prostate, breast and colorectal cancer available at krankheitserfahrungen.de, and to evaluate this service with a special focus on strengthening patient competence (Giesler et al. 2017). Interview data are further analysed, e.g. in regard to cancer patients’ information needs (Blödt et al. 2018).
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Federal Ministry of Health (National Cancer Plan)
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Krebsallianz (https://www.krebsallianz.de)
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Joachim Weis (University of Freiburg, Tumor Biology Clinic)
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Juergen M. Giesler (Unversity of Freiburg, Institute of Medical Biometrics and Statistics)
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Psychoonkology (Comprehensive Cancer Center, Charité)
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Interdisciplinary Breast Center (Charité)
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Interdisciplinary Prostate Center (IPZ) (Charité)
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Stiftung Männergesundheit – Men’s Health Foundation
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Blödt S, Kaiser M, Adam Y et al: Understanding the role of health information in patients’ experiences: secondary analysis of qualitative narrative interviews with people diagnosed with cancer in Germany. BMJ Open
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Giesler JM, Keller B, Repke T, Leonhart R, Weis J, Muckelbauer R, Rieckmann N, Müller-Nordhorn J, Lucius-Hoene G, Holmberg C: Effect of a Website That Presents Patients’ Experiences on Self-Efficacy and Patient Competence of Colorectal Cancer Patients: Web-Based Randomized Controlled Trial. JMIR
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Lucius-Hoene G, Holmberg C, Meyer T (Eds.): Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts. 2018. Oxford, United Kingdom: Oxford University Press.
Doing Health - Health Literacy in Early Childhood Allergy Prevention (HELICAP)
What are we researching?
The overarching goal of Doing Health is to examine the social practices of parenting within which children's health is negotiated in young families, from pregnancy to the first year of the child’s life. In short, Doing Health will analyze how knowledge and behaviors about what makes a healthy environment for a child are negotiated and reproduced in the lives of young families.
What are the aims of the project?
- To analyze how different forms of knowledge come together to shape the care practices of families as they negotiate allergy prevention;
- to describe the complex systemic forces in which health practices are embedded and to understand how expert knowledge is reflected in or modified by other forms of knowledge;
- to increase understanding of how medical information, allergy prevention guidelines and tacit, everyday knowledge interact in structuring families' care practices
Duration: 36 Month
Funding Body: The German Research Council (Deutsche Forschungsgemeinschaft)
Research Partners: HELICAP is a collaborative project comprised of leading researchers at six locations across Germany. In addition to the Brandenburg Medical School Theodor Fontane, the project includes research groups at the Otto von Guericke University Magdeburg, the University of Education at Freiburg, the University of Regensburg, the Hannover Medical School and the Mainz University Medical Center.
Further information can be found at: www.helicap.org
Dr. Joshua Paul
Post-doctoral Research Fellow
Institute for Social Medicine and Epidemiology
Brandenburg Medical School Theodor Fontane
Steinstr. 66/67, House 4
D-14776 Brandenburg an der Havel
Email: joshua.paul@mhb-fontane.de
SGB-REHA: Cross-sectoral gerontopsychiatric treatment and rehabilitation in nursing homes
The number of people in need for care in Germany will continue to grow in the following years. The risk for older people to stay in nursing homes long-term is especially high after hospitalization. The project SGB-REHA regionally implements and evaluates a cross-sectoral multiprofessional rehabilitation concept for older people in long-term care facilities.
In a qualitative pilot study, an innovation for therapeutic care with rehabilitative elements (Haus Ruhrgarten, Mühlheim) was analyzed and a potential best practice model developed. Central elements of the concept are, i.a., individual planning and monitoring of rehabilitative measures, therapeutic care provided by nurses, training for staff, and an extended therapy offer. Fundamental principle is the interdisciplinarity of nursing, medicine, pharmacy, therapy, and social work. The therapeutic-rehabilitative care measures aim at improving residents’ competences in activities of daily living, cognitive capacities, and quality of life, and even a return to their own homes. Further goals are the reduction of medication, hospital admissions, and treatment costs, and an improved quality of life for relatives and work satisfaction for staff members.
Using a stepped-wedge design in a randomized controlled study, the implementation of this innovative concept will be tested with residents over 65 years in twelve nursing homes in rural and urban areas of Western Germany. Quantitative assessments on the interventions effectiveness are accompanied by an economic evaluation. The institute of social medicine and epidemiology is responsible for the qualitative evaluation of effects from the perspective of residents and their relatives as well as staff members, and the intervention process evaluation by conducting interviews and participant observations.
Sponsor: Innovationsfonds des Gemeinsamen Bundesausschusses
Project duration: 2022-2026
Consortium: AOK Rheinland / Hamburg (head of consortium), Deutsche Akademie für Gerontopsychiatrie und -psychotherapie e. V., Evangelische Altenhilfe Mülheim gGmbH, Medizinische Hochschule Brandenburg CAMPUS GmbH, Universität Potsdam
Diversity-sensitive medicine (DiverMed) – Development of a longitudinal curriculum for teaching structural competence
1. Brief description of the project
DiverMed is a sub-project of Empowerment for Diversity – Alliance for Equal Opportunities in Healthcare (EmpDiv) and aims to develop a longitudinal curriculum for the Brandenburg Model Medical Degree Programme (BMM) that fosters structural competence and sensitivity to diversity. This promotes an understanding of health and illness as outcomes of social, political and economic structures. The project is theoretically grounded in Nancy Krieger’s eco-social theory and the concept of intersectionality. DiverMed comprises 34 teaching units (TU) delivered as face-to-face sessions, 12 of which take place in the second semester as part of the Health Sciences seminar; the remaining teaching units are spread across the various modules of the Brandenburg Model Medical Degree Programme from the fourth semester onwards. A particular focus is placed on the clinical phase (semesters 8–10). This prepares students for the complexities of diversity, inclusion and equity in healthcare, as well as for the challenging work that doctors in this field often have to undertake. Realistic case studies have been developed that combine clinical and socio-medical content whilst fostering students’ awareness of diversity. The theoretical project approaches offer a nuanced perspective on the impact of diversity on health and the healthcare system and formed the basis for the development of teaching materials designed to promote both reflection and practical action. In addition, two educational films were produced. One educational video deals with Nancy Krieger’s eco-social theory. The second educational film covers the biomedical model. Furthermore, a podcast was produced. In this, experts were interviewed about their experiences of working on the front lines as doctors. All the teaching materials produced have been published on the EmpDiv website (in German).
2. Duration
2023–2025
3. Funding bodies
Charité – Universitätsmedizin Berlin
Mercator Foundation
4. For further information, see… (in German)
https://www.empowerment-diversitaet.de/ueber-das-programm/

PREDICT
The aim of the PREDICT project, funded by the G-BA Innovation Fund, is to establish a new model of care designed to improve the efficiency of care through pre-hospital triage of patients with suspected non-ST-elevation acute coronary syndrome (NSTE-ACS). Improving the efficiency of care means optimising the allocation of healthcare system resources in the pre-hospital and in-hospital settings without compromising patient safety.
The central element of this new form of care is the pre-hospital triage of patients with suspected ACS using a point-of-care (POC) hs-cTnI test in combination with a web-based algorithm („ACS-Pathfinder“). To this end, additional standardised pre-clinical medical information is collected, and the ACS-Pathfinder is used to determine the risk of myocardial infarction at the scene of the emergency and to make a decision on patient allocation
The primary endpoints analysed are both the effectiveness of the intervention in terms of hospital admissions and patient safety. As part of the process evaluation, further parameters such as the subjective perception of safety and satisfaction with care are assessed qualitatively and quantitatively among both patients and emergency service personnel.
The Institute of Social Medicine and Epidemiology is participating in the PREDICT project as a consortium partner responsible for conducting the process evaluation.
Lead arranger: Leipzig Heart Science gGmbH
Other consortium members: AOK Bundesverband eGbR, Bundesvereinigung der Arbeitsgemeinschaften der Notärzte Deutschlands e. V., Deutsche Herzstiftung e. V., Herzzentrum Leipzig GmbH, Medizinische Hochschule Brandenburg CAMPUS GmbH, Stiftung Institut für Herzinfarktforschung, Universitätsklinikum Hamburg-Eppendorf
Funding period: 10/2025 – 07/2029
Funding reference number: 01NVF24305
Contact persons at the Institute: Dr. Kathrin Gödde and Prof. Christine Holmberg

ReReDi – Responsive Representation in Discourse Processes: Developing Non-Statistical Sampling Strategies Using Artificial Intelligence as an Example
Duration
01.11.2025 – 31.10.2026
Project lead
Prof. Dr. Christine Holmberg
Brandenburg Medical School Theodor Fontane (MHB)
Institute of Social Medicine and Epidemiology
Steinstraße 66–67
D-14776 Brandenburg an der Havel
E-Mail: christine.holmberg@mhb-fontane.de
Project coordination
Tim Holetzek
Brandenburg Medical School Theodor Fontane (MHB)
Institute of Social Medicine and Epidemiology
Steinstraße 66–67
D-14776 Brandenburg an der Havel
E-Mail: tim.holetzek@mhb-fontane.de
Background and objectives of the project
With the growing use of artificial intelligence in the healthcare sector, the question arises as to how decisions regarding the development and deployment of such technologies can be made in a way that is both technically sound and socially accountable. Deliberative processes are intended to help bring together different perspectives and to develop recommendations on socially significant issues such as the use of AI.
The composition of the participating groups is central to the quality of these processes. Selection procedures based solely on statistical representativeness and random sampling fall short when it comes to incorporating the specific experiences, concerns and responsibilities of patient groups.
This is where the concept of responsive representation comes in: the focus is on whether and how representatives of patient groups engage with those affected, are aware of their perspectives, and can provide comprehensible justifications for their actions towards them and the other participants.
ReReDi builds on this understanding of representation and examines how representatives of patient groups can be selected for deliberative processes and supported in their roles in such a way that patient perspectives are brought into debates on technological innovations in healthcare in a way that is transparent, well-founded and accessible to those affected.
Methodological approach
ReReDi is based on a multi-stage qualitative research design in which knowledge transfer, deliberative negotiation processes, and in-depth individual and group discussions are systematically interlinked. At its core is a patient jury, whose members are recruited not via random sampling but on the basis of responsive criteria. The jury first undergoes a structured information phase comprising several digital training sessions on the legal, ethical, technical and health economic aspects of AI use in healthcare. This is followed by a two-day moderated in-person discussion conference, during which the opportunities and risks of AI from the patient’s perspective are systematically addressed and translated into joint positions and recommendations.
The discourse process is scientifically documented through observation logs as well as audio and video recordings. Subsequently, qualitative interviews and, where appropriate, focus groups are conducted with selected jury members to capture individual reflections on role understanding, representational practices and perceived interaction dynamics. A validation phase involving individual, non-organised patients serves to compare key jury findings with the perspectives of those directly affected and to systematically evaluate their feedback.
Expected results
ReReDi will provide both theoretical and empirical foundations for understanding responsive representation and will identify the characteristics and skills representatives need to incorporate the perspectives of those affected into discourse in a credible and accessible manner. The project is expected to produce a consensus-based position paper by the patient jury on the opportunities and risks of AI in healthcare, an empirically grounded catalogue of criteria for the non-statistical, methodologically sound composition of discourse groups, and an application-oriented framework for the methodological design of future discourse processes. The results are to be incorporated into academic publications and provide practical guidance to stakeholders in the healthcare sector, in research and in patient organisations.
Funding body
The project is funded by the Federal Ministry of Research, Technology and Space (BMFTR).
Secondary data analyses on the influence of regional factors on health and healthcare provision
What are we researching?
By analysing large datasets (e.g. routine health insurance data, NAKO data), we aim to investigate associations between regional factors such as socio-economic status and rurality, and health-related outcomes for patients (e.g. those with cardiovascular diseases or receiving cancer care), as well as comparable individual healthcare provision.
What are the project’s objectives?
The main objective is to analyse whether socio-economic deprivation and rurality are associated with health- or care-related outcomes (e.g. survival, rehospitalisation rates or uptake of care).
Further analytical objectives include investigating the extent to which the results can be explained by factors relating to individual medical care or by aspects of regional infrastructure.
Cooperation partners: Verbund Knappschaft-Bahn-See, German National Cohort (NAKO Gesundheitsstudie)
Contact persons: An Dang, Dr. Kathrin Gödde and Susanne Haucke
Publications and conference papers:
- Dang A et al. (2025). Auswirkungen der sozioökonomischen Deprivation auf die Mortalität von Patient*innen mit kardiovaskulären Erkrankungen. Vortrag auf dem 24. Deutschen Kongress für Versorgungsforschung (DKVF), Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland, 22. bis 24. September 2025.
- Dang A et al. (2025). Impact of Socioeconomic Deprivation and Rurality on Mortality in Cardiovascular Patients. Vortrag auf dem 14th EURIPA Rural Health Forum „Rural Reformation: Meeting Wellbeing and Healthcare Needs in Rural Communities“, Lutherstadt Wittenberg, Deutschland, 26. bis 28. Juni 2025.
- Dang A et al. (2024). Auswirkungen der räumlichen sozioökonomischen Deprivation und der Ländlichkeit auf die Mortalität und Re-Hospitalisierung von Patient*innen mit kardiovaskulären Erkrankungen. Vortrag auf dem 5. Brandenburger Kongress für Versorgungsforschung (BKVF), Rüdersdorf bei Berlin, Deutschland, 11. bis 12. November 2024.
Completed research projects
AMD-Care
One of the consequences of demographic change is an increasing number of elderly patients with visual impairments, primarily due to age-related macular degeneration (AMD). Advanced stages of the illness make human or technical assistance indispensable, e.g. during daily household chores, driving, or reading books. Advisory services on medical aids or psychosocial support are available to affected individuals who wish to maintain a maximum degree of independence. However, access to pertinent advice appears to be difficult for elderly people, resulting in insufficient information.
The AMD Care project aims to identify and analyse existing barriers to the use of advisory services on medical aids and psychosocial support. Researchers determine the level of knowledge among opticians and ophthalmologists about advisory services on medical aids and psychosocial support, and explore the lifeworld experience and perception of elderly AMD patients.
AMD Care will use study findings to develop strategies to improve the distribution and knowledge of advisory services on medical aids and psychosocial support via ophthalmologists, opticians, general practitioners and other health professionals.
Sponsor:
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Friebe Foundation
CoronaCare - An ethnographic study of the risks to and potentialities for social health during the Corona crisis
Government public health measures, namely social distancing, mandatory mask wearing, and the prohibition of large gatherings of people, have significantly slowed the spread of the novel SARS-CoV-2 coronavirus. These sweeping measures have, however, also fundamentally altered social life and as such they have serious implications for "social health." Social health understands health to be fundamentally social, that is sustained in and through everyday social contacts in communities, social networks, and families. It highlights the importance of community and togetherness on our physical health and psychological well-being. CoronaCare is an ethnographic study which will longitudinally examine the impact of policy and community interventions on social health in Germany. Ultimately, CoronaCare will derive empirically informed strategies and recommendations for communities and individuals to maintain social health in future pandemics.
Project duration: 2020-21
Funding: Federal Ministry of Education and Research (BMBF, Germany)
Cooperation partner: Institut of Social Medicine and Health Systems Research, Otto-von-Guericke-Universität Magdeburg
For further information click here.
CoronaPflege – Psychosocial stress of caregivers in Brandenburg nursing homes during the Corona crisis
Nursing staff, especially those in geriatric care, face diverse and far-reaching physical, psychological and emotional stresses in their day-to-day work. Since the beginning of the Corona crisis, such stresses are likely to be even more noticeable. Particularly in the state of Brandenburg, where the need for nursing staff will continue to increase in the future due to demographic developments, it is of central importance to identify such stress factors in order to be able to improve employment conditions in nursing. Therefore, the question arises which factors contribute most to the psychosocial stress of nursing staff in Brandenburg's elderly care facilities during the Corona crisis.
The CoronaPflege project addresses this question with the help of quantitative and qualitative research elements. The quantitative part is a one-time anonymous questionnaire survey, which is currently being conducted in four regions. In addition to socio-demographic information and questions about the respective care facility, the questionnaire particularly includes questions about current psychosocial stress at work, the impact of the Corona crisis on various aspects of professional and private life, and stress. In addition, interviews will be conducted with some volunteers to shed more light on the impact of the Corona crisis on the reality of life and the everyday professional life of caregivers.
DigiKO - Digital communication tools
The DigiKO project investigated how and what information is exchanged between doctors and patients outside of traditional face-to-face consultations at the doctor's office.
Digital technologies, in particular, are becoming increasingly important – a trend accelerated by the SARS-CoV-2 pandemic. In addition to telemedicine services such as online video consultations, digital applications are also playing a significant role in the exchange of information between patients and doctors, as well as between doctors themselves. The aim of DigiKO is both to assess the current state of communication and information transfer within everyday healthcare practice and to identify the needs of both healthcare providers and patients.
The study will subsequently be used to understand how information is communicated and what information is required, with a view to developing an information-sharing infrastructure for healthcare provision that is tailored to the needs of both healthcare providers and patients.
Methodology
The project is designed as a mixed-methods study employing both qualitative and quantitative research methods. In the first stage, qualitative interviews will be conducted with people aged over 65, particularly cardiology patients, as well as with GPs, practising cardiologists and senior consultants in cardiology. Building on this, a comprehensive quantitative survey will be carried out among all GPs practising in the state of Brandenburg.
Project duration
June 2021–June 2022
Publications
- Holetzek T, Häusler A, Gödde K, Rapp M, Spallek J, Holmberg C. The Role of the Installed Base in Information Exchange Among General Practitioners in Germany: Mixed Methods Study. J Med Internet Res 2025;27:e65241, doi: 10.2196/65241.
Konferenzbeiträge
- Holetzek T, Schliephacke J, Häusler A, Holmberg C. Die Bedeutung der Digitalisierung und ihrer Barrieren für den Informationsaustausch von Hausärzten in Brandenburg: Ergebnisse einer Mixed-Methods-Untersuchung. 22. Deutscher Kongress für Versorgungsforschung (DKVF). Berlin, 04.-06.10.2023. Düsseldorf: German Medical Science GMS Publishing House; 2023, doi: 10.3205/23dkvf147.
- Barrieren und Bedarfe des Informationsaustausches innerhalb der hausärztlichen Versorgung: Ergebnisse einer Mixed-Methods-Studie. Gemeinsame Jahrestagung der Deutschen Gesellschaft für Sozialmedizin und Prävention e.V. (DGSMP)*, des Deutschen Netzwerks Gesundheitskompetenz e. V. (DNGK) und des Nationalen Aktionsplans Gesundheitskompetenz (NAP), 30.08.-01.09.2023, Hannover. Gesundheitswesen. 2023 Aug 22;85(08-09):819. German. doi: 10.1055/s-0043-1770634. PMCID: PMC11248630. 58.
- Holetzek T, Peters T, Zerbaum M. Zwischen Fax und KIM: Wohin steuert die Kommunikation der niedergelassenen Gesundheitsversorgung in Brandenburg. DMEA 2023, 25.-27.04.2023, Berlin.
- Holetzek, Häusler A, Holmberg C. Informationsaustausch in der Primärversorgung im Land Brandenburg: Erste Ergebnisse einer Mixed-Methods-Studie zu den Potentialen und Barrieren aktueller Kommunikationspraktiken für den Versorgungsalltag. 21. Deutscher Kongress für Versorgungsforschung (DKVF). Potsdam, 05.-07.10.2022. Düsseldorf: German Medical Science GMS Publishing House; 2022, doi: 10.3205/22dkvf192.
KaViB - Cardiological Care in Brandenburg
Despite a relatively good supply situation of cardiologists and general practitioners, the federal state of Brandenburg shows a high disease burden and mortality rate for cardiovascular diseases in comparison to other states. The research project KaViB investigates how the overall cardiological care infrastructure in the field of cardiovascular diseases is structured. It therefore makes use of a mixed-methods-approach that on the one hand maps all relevant care facilities and investigates how these might be related to hospitalization rates of selected cardiovascular diseases or risk factors in the elderly. The project also attempts to investigate to what extent these hospitalizations might be related to factors of rurality. The qualitative part of the research project will investigate how patients with cardiovascular diseases or risk factors shape their health care. In doing so, a lifeworld perspective will be taken, which wants to understand the subjective design as holistically as possible. Finally, in a third step, it will be examined how existing care infrastructures are used and to what extent informal aspects such as social networks, neighborhoods, etc. also play a role.
NAVICARE – Network to strengthen patient-oriented health services research
Germany’s healthcare system is highly specialized and at the same time extremely fragmented. This is a challenge specifically to chronically ill and multimorbid patients. Innovative care models may serve to remove existing barriers and bridge resulting supply gaps. So-called patient navigators constitute a possible approach already employed in countries such as the United States. Navigators are specially trained to accompany and support patients even beyond the limits of the usual care structures and thus facilitate “navigation” within a fragmented care system.
The NAVICARE network combines the expertise and methodological competences of various project partners and includes stakeholders and patient representatives. Apart from research and networking, the project objectives are to improve training in health services research and to promote of young researchers. The Charité Universitätsmedizin Berlin is the project site, with Prof. Holmberg as one of the co-applicants.
Project duration: 2017-2020
Sponsor: Federal Ministry of Education and Research (BMBF)
Decision-Making in Patients at Risk for Breast Cancer
In the US tamoxifen and raloxifene, two selective estrogen receptor modulators (SERMs), are approved for breast cancer risk reduction since both SERMs have shown to reduce the risk of invasive breast cancer by 50%. The study´s primary aim was to describe the influence of social, environmental and psychological factors (sociality of medication intake, life-events, understanding of prevention, clinical situation) on the decision of women at risk for breast cancer for using chemoprevention agents (Holmberg et al. 2017). Secondary aims are to understand the implications of and influences on decision making that a diagnosis of 'being at risk for breast cancer' has for women, to develop a survey that identifies the factors that influence the decision-making process of women at high risk of breast cancer who are considering chemoprevention, and to understand, what factors hinder women from taking chemoprevention for breast cancer (e.g. Blakeslee et al 2017; Gunn et al 2017).
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National Cancer Institute
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MD Anderson Cancer Center (Division of Cancer Medicine: Dr. Therese Bevers)
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Boston University Medical Center (Center of Excellence in Women’s Health: Tracy Battaglia)
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University of Utah (Department of Population Health Sciences: Angela Fagerlin)
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Holmberg C et al, NRG Oncology/National Surgical Adjuvant Breast and Bowel Project Decision-Making Project-1 Results: Decision Making in Breast Cancer Risk Reduction.2017, Journal for Cancer Prevention
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Blakeslee S et al, Deciding on breast cancer risk reduction: The role of counselling in individual decision-making – A qualitative study. PEC-Journal
Risk Scores
The project addresses knowledge transfer processes in epidemiological knowledge generation and the circulation of epidemiological findings in the form of so-called risk scores (Kalender/Holmberg in print).
The objective is to develop an understanding of knowledge transfer processes in epidemiological knowledge generation using the example of a cohort study. An information platform is in preparation to illustrate the generation and dissemination of epidemiological knowledge.
The project uses a combination of method elements from social science and technology research (guideline-based interviews, participatory observations and document analyses). The website is being designed in collaboration with curators, graphic artists, web designers, IT experts and dramatists.
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Federal Ministry of Education and Research
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Institute of Sociology, Goethe University Frankfurt (Prof. Dr. Susanne Bauer, now: University of Oslo, Centre for Technology, Innovation and Culture)
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Kalender U, Holmberg C (in print): Zukünftiges Datendoppel. Digitale Körpervermessung in Kohortenstudien. In Heyen NB, Dickel S, Brüninghaus A (Eds.), Personal Health Science. Persönliches Gesundheitswissen zwischen Selbstsorge und Bürgerforschung, Wiesbaden: Springer VS 2018.
AdvanceGender
The aim of the AdvanceGender collaborative project is to develop a ‘toolbox’ of methods for gender-sensitive research that can guide the design of research processes in population-based studies: the aim is to facilitate gender-sensitive research and provide a basis for evidence-based health reporting. To this end, the AdvanceGender project focuses on the areas of study participation and recruitment, data analysis and health reporting.
The AdvanceRecruitment sub-project is dedicated to analysing recruitment and study participation in population-based studies. The project investigates how gender-specific differences in participation in population-based health studies can be explained, and whether and how other categories such as income and educational attainment are related to this.
Website: www.advancegender.info
Further information can be found here (in German).
Funding body:
- Federal Ministry of Research, Technology and Space (Bundesministerium für Bildung und Forschung (BMBF))
Cooperation partners:
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Institute of Public Health and Nursing Research (IPP) at the University of Bremen
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Health Reporting at the Robert Koch-Institute
STREBU - The importance of social participation for the quality of life of older people in structurally disadvantaged regions
The STREBU project investigated opportunities for social participation and health-related quality of life among older people in the Uckermark region. It was funded by FGW Brandenburg. Opportunities for participation and barriers to participation were identified through qualitative interviews with voluntary and professional experts in the field of social participation for older people in the Uckermark region, as well as through a mapping exercise of local associations.
Link to the press release: https://www.mhb-fontane.de/de/aktuellesartikel/soziale-teilhabe-aelterer-menschen-in-laendlichen-regionen (in German)
Paper:
- Desch, A., Holmberg, C., Demmerer, N., Euler, S., Jaehn, P. & Bergholz, A. Opportunities, challenges, and future directions for the public social participation of older adults living in a rural region in Germany: Results from a mixed-methods study. Journal of Rural Studies 114, 2025. https://doi.org/10.1016/j.jrurstud.2025.103567
Speech:
- Desch, A., Holmberg, C., Demmerer, N., Euler, S., Jaehn, P. & Bergholz, A. “Bedeutung der gesellschaftlichen Teilhabe für die Gesundheitsbezogene Lebensqualität älterer Menschen in strukturschwachen Regionen am Beispiel der Uckermark“. 3. Brandenburger Versorgungsforschungskongress, 2022, Brandenburg a.d. Havel.